The following story was contributed by reader Nadeen Green.
Managing a loved one with dementia…
For those of us raised with good values, the realization that it is sometimes “okay to lie” can be long in coming and difficult, particularly when the person we are lying to is a parent. One of the challenges I faced with my mother-in-law came from my need to “always be honest and truthful.” Because I am a lawyer by trade, I believed I would be able to haul Norma from her early stage dementia back through the sheer power of my exceptional (at least in my mind) powers of persuasion and logic. No one was able to convince me that this was not only an impossible task but cruel as well.
When it was necessary that Norma move into assisted living, she was very resistant. She was going to stay in her home until the “good Lord took her.” People wiser than I mentioned that they had transitioned their elder by telling them they had to move temporarily during a “home remodeling project” that never happened. I tried that suggestion, and Norma agreed to move “temporarily” while her home was “fumigated” for termites. I even created an exterminator’s work order for Norma to sign. (Not only lying, I was now forging documents!)
“Temporarily” worked because one of the symptoms of Norma’s dementia was her inability to keep track of time. Each day I told her the work would take “three more days.” This worked until it was no longer an issue.
Yet when she said her parents were coming, I told her that wasn’t possible. When she said she needed to go to their funeral, I told her that had been years ago. At first I didn’t realize that she was becoming angry with me was because I was a source of confusion and frustration. Finally, on came the proverbial light bulb. When Norma wouldn’t bathe, I created a letter that supposedly came from her doctor (forgery added to my sins), telling her why she needed to take her bath.
What is “dementia” to us is “reality” to our loved ones with dementia…we need to embrace and endorse that reality. The next time she said her parents were coming, I assured her they were, but it would be a while because of traffic. When she said she needed to go to their funeral, I told her to go ahead and eat dinner while I made the necessary arrangements. Shortly all was forgotten, but because I showed her that I appreciated her world, it was done without the hurt, confusion and stress.